It's almost time

It's almost time for me to go back to work, and I"m feeling more than a little blue about it. It goes beyond leaving Hannah. I don't want to go back to the person I was before. I don't want to be super stressed about other people's kids and care what others think. All that matters is that little girl, her sisters, and DH.

*sigh*

Writing

I haven't written in a while. When I write, I dig into a part of me that is hurting or is sorrowful. I'm scared to go there because so much is built up that I am afraid of getting lost in the emotions.

But something tells me it's going to happen soon. I need to open up again.

Hope and Sadness

My emotions are everywhere, and it's driving me nuts. I have enjoyed my time at home because I'm safe...away from social pressures and demands to be more than what I am right now...a happy, grieving, in love, tired, exhausted mommy.

I'm so excited because a dear friend just got a bfp, and I just know that she'll be bringing home her baby. She has lost three sons, and my heart is in my throat just waiting for the all ok from her.

I'm also sad because it shouldn't be me any more. I have found several clinics that do tubal reversals, and if I can get fate to cooperate, it shouldn't take more than a year to save up for it. I don't necessarily want another baby (yeah, right), but I do want to be free from the symptoms after the tubal.

Anyway...just rambling :)

A message for my friends

I wrote this when I was planning his funeral. As it turned out, I didn't have the strength to share, and my family didn't care to come to his funeral (turns out my family seems to think you need a brain to be a human and deserve a funeral. Who knew?).

You've all kindly gathered to help us celebrate..
Our little Jonah is our Saint standing at Heaven's gate.
But what you don't or can't know is why is worth it.
How could you know? His zel and energy was our little secret.

I knew he was here long before the test told us...
dreams of Marshall's brother were placed in my trust.
We held out breaths and praised God when Finally it was true!
Another baby was coming and we wondered...pink or blue?

The fateful day came when the dr. called and warned us...
we were sent back down to the hellish place where in drs. you had to trust.
Your baby has no brain and the fluid is failing him
Chosse grace in his death or a horrific end.
Which one will you choose?

Our saint was born after three days of a Mother's True Labor
And soon, we saw that upon us God placed his truest favor.
Jonah has the most peaceful face...reflecting God's grace.
I could describe him using every word I know,
but still you wouldn't know our son the way we love him so.

He wasn't a thing, another mistake, or a note from God to stop.
He is our saint sent to us to remind us of God's love.
Please be kind to my family and remember we love him so.
Our Jonah Michael, brother of four and son of two lost souls.

One step forward...

Thank you for the well wishes about Hannah :) We are over the moon with her. She's just such an awesome addition to our family!

I'm feeling rough still, and it's mighty frustrating. We are going to go to the drs. and find out what the deal is, and what can be done about it. I know that mourning is a part of dealing with a tubal, but this is ridiculous. I've already started my period, and I'm exclusively breast feeding. It's a very painful and messy period to boot. I'm not doing this until I go through menopause. No way.

I have been packing and moving things around, and came across a notebook that has some poems I wrote after losing Jonah. I'm going to share them as soon as Hannah lets me :)

She's here

Hannah Elizabeth Grace was born a week ago :) She's beautiful, healthy, and here!

I went to my 36/6 appt feeling miserable, and the dr. said that was it. It was baby day the next day. So we freaked, made arrangements, and started our adventure.

We began in triage in a room that was about 30 degrees below zero. I laughed at Joe for hours as he bundled up trying to stay warm. We live in Florida and he was bundled up in August. LOL.

Ah. Well, it took longer than they thought to get me to pre op. We finally got there at 12:30 August 26th. We ran into the dr. that delivered Summer and Emma, and he spent time with us. That was awesome! Finally anesthesia came in, and he decided to give me an epidural rather than a spinal. My blood pressure dropped dramatically, making me really ill. He's get it up, I'd get sick, it'd go back down, I'd get sick. Finally it stabilized and I was wheeled into the OR. I began throwing up again (nerves, I guess) so he gave me a relaxer. I slept through most of the birth... :) I remember her being born and Joe showing her to me. Then we went to post op WITH THE BABY!! (for the first time).

Anyway, she was born at 3:20 in the morning, weighing 5 pounds 10 ounces, and measuring 18 inches. She is jaundiced, and is slow to regain her weight. But she's feisty and loving and funny, and we love her dearly.

I'm doing ok. Nope. Not true. I am NOT ok. I have the blues because I'm regretting the tubal. Is it that I want another baby? I don't think so. But I'll never have that little boy running around. BUT a dear friend made a point...I will NEVER feel complete because I know that two children are missing. Maybe I just need to work through all of these feelings.

I am physically sore. My uterus has considerable scarring, and you can feel it right above my pubic bone. I can also feel my tubal ligation, and that sucks. But part of me knows the tubal was the right thing to do...my body couldn't take another pregnancy...or could it? I will talk to the dr. some more about a reversal, but she was afraid that the scarring would be too much to sustain a pregnancy. Not to mention the cost of reversing it, my age, risks to another baby, etc.

I made the right choice...I know I did.

So why do I feel this way? Why do I feel alone and sad while I also feel happy and over the moon?

Our story of stillbirth and heartbreaking choices

I remember sitting on a swing as an 8 year old, thinking of my life as an adult. Never did I picture the loss and heartbreak we have been through would be a part of that daydream.

Marshall Jacob Schaeffer's Story

We found out we were pregnant with Marshall before Christmas 2007. We were really not expecting to get pregnant again, but God has His own plans. The pregnancy was unusual for us in that finding his heartbeat was always a chore. We hadn't experienced issues with this with the girls' pregnancies, but Marshall was a little pain ;) Each time we'd go for our ob visit, I'd have to go for an u/s because we couldn't find his heartbeat. I was 19 weeks plus along when I went for an appointment before the big u/s. Again, we couldn't find his heartbeat. I KNEW something wasn't right, but the dr. kept trying to assure me. I got on the phone and begged and pleaded for an appointment as soon as possible. The next day would be THE day. March 26th. We went in to the u/s room after conversing with a couple expecting their third daughter. We were in a light mood, as DH kept assuring me that everything was fine. The moment the u/s wand hit my belly, the tech's face fell and Joe's countenance completely changed. "I'm so sorry" were the last three words I heard before the world became silent. There on the screen was our little baby, gender still unknown, with his head bowed and arms folded quietly as if in silent prayer. Our baby was gone. The tech called the dr. and that is when I first heard the two worst words I'd ever heard up to that point..."Fetal Demise". WHAT? Demise? As in death? I lost my baby? NO! That happens to HER, not me!

We finally got an appointment with a dr. that delivered at the hospital I had to go to, and on March 28th, we made the trek to the hospital. We had to check into labor and delivery, and I sat in the little lobby while a really pregnant lady in a bubble gum colored shirt checked in to have a c section. I hated her. I hated her husband. He kept looking at our tear soaked faces as if to say "What is YOUR problem?". But we sat until the nurse came to get me. It was then that I wanted to run. I stopped, and DH tried to lead me through the double doors. In my mind, if I didn't go with them, then this wasn't real. But it was. Very real.

I had to walk past the nursery, but out of respect, they'd closed the blinds and closed the doors so I didn't have to see/hear babies. We were separated from all the other mommies on l/d, and our door had a wonderful sign on it that let everyone know that we were losing a baby. We were SO blessed in that way. We walked in, and the nurse left to get paperwork. I flew into a blind rage and threw the magazines in the room, and I cried. I was NOT going to put the gown on. NO! NO! NO! But DH prevailed, and I got dressed and ready. The medication was inserted.

The next two days passed in a blur of great meds and quiet movies with DH. We cried together, and DH and I prayed for our baby. At 4:50 in the morning, March 30, 2008, my water broke. I was petrified. It was going to be over soon. At 5:02, with DH and a nurse by my side, our first son, Marshall Jacob, was quietly born. He was all of 3.35 ounces and 6 inches, but he was the exact image of my husband. I was devastated. I finally gave my husband a son, his exact double, and I failed him. My body failed him.

We didn't want an autopsy done because we didn't want anything else to happen to him. He'd been through enough in his young life. He was perfect, and we wanted him to remain untouched.

Marshall was cremated, and so far, remains at home with us. He is our first son. And, he is the big brother to another angel.

Jonah Michael Schaeffer's Story

We struggled to move on. The grief seemed insurmountable, and soon I was hungering for another baby. I worked past the feeling of wanting to replace Marshall, and grew to genuinely want another baby. We struggled to get pregnant again, and gave up.

I am a teacher, and noticed that in December 2008, 3/5 of my students were out with the flu. So it really didn't phase me when I came down with symptoms. DH held my face one day when I came home early and said "You're pregnant". Sure enough, he was right!

I had to switch OB's, and from the get go, things weren't right with the dr. This was my 5th pregnancy, and I know what happens when. The dr. wouldn't order the first trimester blood draws till I was 12 weeks. I questioned this given our loss of Marshall (we never found out why he died). I chose to switch drs. It took that office 4 weeks to get my paperwork so I could switch drs. I finally got to see my new dro. when I was 17 weeks along! We rushed to get the bloodwork and screenings done before time ran out.

I was at work when the dr. called. This dr. had delivered our first and second daughters, and I adored him, so I knew when he called there was something wrong. He said that my AFP levels showed a risk for down's and neural tube defects. Down's was something like 1:72, but NTD was 1:34. My heart sunk into my toes and I stopped breathing. I rushed home to work the phones to get the level 2 u/s asap.

I bawled on the phone with the office manager at the OB office, and she got me in the next day. I spent that night searching the internet, but found too many stories of women discouraging the testing. The stories I found with odds like mine were devastating...something was wrong with the baby. I started to put it into my head that this might not end well. But Joe and I reasoned that we'd paid our dues...certainly we wouldn't lose another baby.

We were eventually called back to the u/s room the next morning. The tech showed us the baby's spine, feet, and hands. She said the dr. would be there in a few minutes. When she left, we laughed about our little alien, who was practically perfect, but at 20 weeks, still had that alien appearance. The dr. came in, shook our hands, and got to work.

The room fell silent. "In the world of neural tube defects, we have a spectrum. Some people have spina bifida and don't know it. At the other end of the spectrum is anencephaly". WHAT? I heard every other word. "Neural tube not closed" "fatal" "dying" were among some of the words I heard before absolutely losing it. The dr. and tech let me get dressed and led me to a room where we could start digesting what we just learned, and get information.

An hour and a half later, I agreed to an amnio. I needed to know what was going on. And, when the baby was born, he would not be subjected to an autopsy either. (We still didn't know if he was a boy or girl). While we were prepping for the amnio, the dr. noticed a significant lowering of the baby's heart rate and motions. He also noted significant swelling in my hands, which I'd not paid attention to before. The process began, and when they were finally able to draw back fluid, the dr. sighed and said 'oh no". The amniotic fluid was blood red...this was just not good.

The dr. weighed in with his opinion when asked what we should do. He was pro life as well, also a Catholic, and the father to a child with severe autism. However, he expressed concern that the baby was NOT doing well, and told DH that I wasn't either.

We went to Church. Our priest had just returned from saying rosaries at the local abortion clinic, which just devastated me all over again. But instead of judgment, we found support. Unconditional, loving support. We left with lighter hearts, and picked out an urn. One way or the other, we would be bringing home another little baby in an urn.

We went home, discussed our options, and decided to meet with the OB the next day. The OB said he'd stand behind our decision, but urged me to think about my children at home and my husband. The baby's heartrate was dropping, and my swelling had significantly increased since the day before.

We decided that as long as no disfiguring or harming of the baby's self was involved, we would induce. The dr. supported this decision, but said that our case had to be turned over to the termination of pregnancy board at the hospital, and that could take a few days. I was booked for daily appointments to check the swelling, and sent on our prayerful way. Twenty minutes later, we were called to the hospital. Based on the numbers the board saw, we needed to get started to stop any further side effects to me. By the time we got to the hospital, my bp was high, and I was barefoot from the swelling.

It felt like deja vu. I again didn't want to change. I again felt horrible. But this time, I also felt like an executioner. I was given a relaxer and allowed to pray with the hospital Chaplain as we started the meds.

On April 26, 2009, the dr. came in to examine me because the baby hadn't come after nearly 3 days of labor. Our baby had slipped out of my uterus and into my vagina. The dr., her intern, and a nurse worked to get the baby out. At 9:10, we were told "it's a boy". Again, I was given a little boy, and my body betrayed him.

Where I Am Now

My family has suffered significantly. My daughters have known too much death, but are receiving a lot of help. They are waiting for the arrival of their very healthy, very unplanned, but very loved baby sister. We are due, on Jonah's due date nonetheless, with another girl. This time I am sure she's coming home.

But just because we can see the rainbow doesn't mean we'll forget the storm. Our boys are very much a part of our lives. Our happiness at being their family is intertwined with the sadness of missing them. We strive to keep friends and family from forgetting that our little boys might not have been here long, but they were here and that they are so very loved.

No, this isn't the image I thought of as a daydreaming 8 year old. But it is my reality.

Changes

It's been a LONG time since I've updated, so I think I oughta :)

I am pregnant, and this time, we are probably bringing home our rainbow :) Hannah Elizabeth Grace will be here in over a month!!! She's healthy, happy, and beautiful! She was not planned, but is so very welcomed and celebrated!

Joe and I have had a rough time. Not marriage wise, of course!! Joe's business closed, and I've been the main breadwinner. My husband is a hell of a man, having become great through his own life lessons and without anyone's help. He will get back on his feet in God's time. Meanwhile I am here to support him and the kids. Problem? I'm going to be out of work for a few months while I recover. EEEK! But again, God's in control of this ride, kwim?

I'm sad to say that one of the side effects of losing children has been the loss of family. My sisters both lied and said they'd be at our first son's service, and never showed. They never acknowledged our second son. No love lost...really, I will NOT bat an eyelash at anyone that puts themselves above my children. But I've lost my father. He expects me to 'make up' with the sisters, but I have no desire, nor ambition to. I didn't wrong them. He also acts as if I need to be like my mom, the perfect housekeeper. But I work outside the home, and don't drink to overcome the pain he inflicts. I give it back to him. Since he can't affect me, he's being nasty to my husband. I will not choose between my father and my husband...there is no competition. My husband is twice the man my father is...it's just sad. But, lexapro helps. :D

I have picked up quilting, and am enjoying it. It's fun! I don't have a machine, so I'm hand sewing. Insane :)

Anyway...I'll catch up again soon!

and so it goes...

Now I have to live the rest of my life. I am officially the mommy to two angel boys. I have a baby born still, and another who was anencephalic. I have three little girls, and a husband. Hopefully we can add to those numbers.

I am also now the sole breadwinner for the family until DH can get back on his feet after his business has gone under. I am responsible for the mortgage and all payments related to such. I am also really wanting to move. I have to get my national board certification and autism endorsement. Hopefully all of that will bring me closer to a specialist degree, and more pay.

Meanwhile, I slept last night with my Jonah's picture. Tonight, it will be Marshall.

I'm going nuts, aren't I? I don't mean that sarcastically. I think I've gone insane.

Jonah's Due Date

His due date, on all u/s, was September 15th *Emma's bday...Marshall was due on Summer's*. We would have had a c section, and had the date set as the first. So Tuesday would have been my little guy's birth day.

Please remember my little guy. Don't forget that anencephaly DOES happen, it is NOT pretty. It leaves broken hearts behind.

Dates and times

Dates mean something when you've lost a loved one. 4 years since Mom died. Marshall should be a year old. Jonah was due on September 15th, with a section on the 2nd. I hate dates. The calendar is evil!!

Things are ok in the grieving department. As long as Joe and I keep it to ourselves, the world is happy. So, that's how we are dealing at the moment.

Our biggest worry is finances, and that may lead us to the biggest decision I've ever made. I think we are moving out of state. I know the economy is bad everywhere, but I can't support us here. I think it's time to move to NC. But what breaks my heart is leaving Dad. Without my kids, I know he'll not last. They are his world! But our mortgage here is more than most people's monthly bills, and I just can't keep it up.

So, I'm just blah.

Working it out in hymns

I've had melancholy seep over me like a tidal wave this week. I miss my mother and my sons.

Hymns are helping me work it out, and I'm so glad that my mother, through her dying process, shared them with me. So, I share them with you!!

"In the Garden"...favorite parts: I come to the garden alone while the dew is still on the roses...and He walks with me and He talks with me, and He tells me I am His own.

Sweet Sweet Spirit....Stay right here with us, filling us with your love

there are many more. I'm just in a mood :)

Soon I'll have my son's reborns...babies to cuddle and love!! Woo Hoo!!

Marshall Jacob and Jonah Michael

I HAVE two sons that can only exist online or with my husband and kids. I go back to work on Monday, and it's there that I have to pretend they don't exist. My 'friends' are much happier when I don't talk about them get sad, so I'll find that smile I plastered on while I was working at Disney and continue my professional life.

Inside, I die every day. It's not that I want to pretend they are still here, but I want to be able to say out loud "I wonder what Jonah would have done. Would Marshall have played baseball?". Instead, I'll listen as friends drone ON and ON about crap that really is not even important (really, I don't care about your mani/pedis. I don't get them, consider them a waste of money and time...I don't care that you spent $200 on a $15 haircut!!). But, as long as they think I'm happy, they leave me alone and forget trying to save me.

This country SUCKS when it comes to grief. A week after Mom died I was expected to be "over it". (ppsssssssssst..it's been 4 years, and it hurts as bad today as it did then). I got a little longer with my first son, but with Jonah. HA!!

Meh. I hate going back to work after time off. It stirs up too much crap.

What to do?

Before us lies choices in life. I hate choices. I don't make decisions easily, and when I DO make them, most are mistakes!! Argh!

So, do we keep up this horrendous fight for survival? Things are bad! We could move and start over somewhere. That means having the courage to leave my father (my mother passed away 4 years ago), leaving the cemetery where Mom is buried, and starting over. Really, I have no ties other than Dad to this area. I can start over and it wouldn't affect me. But the kids...would they be ok? Chances are...yes. We'd move to NC, and that would take us closer to a family they, and I, have never had a chance to get to know. It's Mom's family, and to be honest, being there is like being with a piece of Mom, and I would love to do it.

That would mean the entire family's survival would fall on me. Joe could be a sahd, and get the kids off to school, etc. But can I live with that weight? I don't think so. I want Joe to work. I just don't know what to do any more.

This economy is killing us. I am pissed that those who should have the money to spend can't spend it, and that makes it worse for those who need jobs from them. I don't know how to support my husband, and his business is dead. He needs to work. We need him to work. But he's kind of emasculated at this point.

We've been through enough! I was reading the book of Job last night and 'got' that praising him during the storms is important. I just am tired of the rain. We've lost Mom, the boys, and now our way of life too. Really? Do we deserve this?!

Passive Aggressiveness Sucks

I'm so passive aggressive sometimes it's ridiculous.

See, I'm angry. I'm angry that in the world of anencephaly mothers who had to make a heart breaking choice are pariahs. Do you think any of us said "We're going to have a freak of nature of a kid. Let's kill it!!" and had a party? Really? That's just ridiculous.

Let me take you into the ultrasound room that day. I was scared shitless, as the numbers from my quad screening showed a positive hit on NTD's. Joe was sure everything was going to be fine, but I just KNEW that something was wrong. We looked at the screen, and we saw our son. The tech said nothing but point out his features. She went to get the dr., and his countenance fell. He began with 'In the world of NTD's there's spina bifida...." and I heard nothing until he got to "anencephaly". He showed us. I screamed. Joe lied to me. It wasn't fine. 45 minutes of gut wrenching talks and crying. Then we decided that no matter what, this baby wasn't getting an autopsy. No one was going to destroy my child's body. We opted for an amnio.

When the dr. drew back the needle, his already sunken face almost melted off. "Oh no..no, no" are the words that slipped out his mouth. Then he began to explain what he knew already upon visual inspection of the life giving fluid. Turns out that the amniotic fluid consisted of 40% of his blood and mine.

We went home just to talk about what we were going to do. Joe, my husband, and father of my children, deserved to have input too. Were we going to let him choke to death? Were we going to continue carrying this little one and get the other children confused as to what the final outcome would be? Could we continue the pregnancy not knowing?

Induction was hell.

I am tired of the sanctimonious "Oh anencephaly was SUCH a blessing. Oh aren't I a hero" shit. I could get cruel, but I won't sink that low. Mommies that carry to term (well, when they are rooted in reality) go through HELL. Exalting this defect is a form of denial. There's not a realistic mommy out there that Thanks God for anencephaly. We thank God for our children. We thank God for the time we have with them. We curse anencephaly. Without it, we'd have our children.

Ladies, pop a pill. Get a script from your dr. Tell them an anencephaly mom sent you.

Thanks!
Heather

From anencephalie-info.org

What role does Folic Acid play in NTD prevention?

Folic Acid is a coenzyme. It plays an important role in many metabolisms. The developing unborn child needs it to grow cells, tissue and organs. During that phase, the folic acid requirements are higher than usual. As far back as 1976, scientists noticed that women who gave birth to NTD babies had low serum rates for folates and low vitamin levels in their red cells. In 1980, Professor Smithhells from Leeds (UK) was able to show that an additional intake of 0.4 mgs of Folic Acid before and at the start of a pregnancy significantly reduced NTD rates. This finding was confirmed by many other serious clinical studies using large numbers of women (over 250 000). The conclusive proof of the preventive effect of Folic Acid, even for women with no NTD history, came when a Hungarian study showed that, of the 2014 women who had taken additional Folic Acid, none developed an NTD, whereas, of the 2052 who had not, 6 cases were detected (Czeizel and Dudas, 1992). Recent research on NTD pathogenesis suggests that disorders linked to methioninesynthase activity could be one of the factors involved. This enzyme transforms homocysteine into methionine. To do so, it needs a methyle group which is provided by Folic Acid intake. If this transformation fails to take place, be it because of an enzyme anomaly or lack of Folic Acid, homocysteine levels increase. This would appear to prevent the closure of the Neural Tube. An additional intake of Folic Acid, coupled with an intake of vitamin B12 can rectify this anomaly which is in part connected with enzymes. Other studies have also shown that further anomalies such as heart malformations, lift and palate clefts and urethra malformations can be prevented by an additional intake of Folic Acid (Czeizel 1993, Antony 2000).

At what point and for how long should one take Folic Acid?

Folic Acid should be taken at least 4 weeks before a planned pregnancy.

NTDs are birth defects that occur between the 20th and the 28th day after conception, before most women know that they are pregnant. Because about half of all pregnancies are unplanned, it is important to include at least 0,4 milligrams of folic acid in every childbearing age woman's diet. However, for those women fortunate enough to confirm pregnancy very early on (i.e. 14 days post ovulation), and who have not been taking Folic Acid supplements prior to conception, you should begin immediately as there still may be some time for the supplement to benefit the developing embryo. Given that many pregnancies are not planned, the best way to prevent these birth defects is for all women of child-bearing age to ensure that they are taking enough Folic Acid everyday.

Women also need more Folic Acid during pregnancy and breast-feeding. Hence it is wise to continue to take pills after the critical moment when the Neural tube closes.

How much Folic Acid should one take?

0.4 mgs per day, in addition to the folates present in food. Multivitamin supplements containing less than 0.4 mgs of Folic Acid should not be taken in higher dosage in order to increase Folic Acid content. Too high an intake of other vitamins is harmful.
Prof. Andrew E. Czeizel presented a study in 2004 which showed that multivitamins containing 0,4 - 0,8mg of folic acid were more effective for the reduction of NTDs and other congenital abnormalities than high dose of folic acid.

My Shoes

I am wearing a pair of shoes.
They are ugly shoes.
Uncomfortable Shoes.
I hate my shoes.
Each day I wear them, and each day I wish I had another pair.
Some days my shoes hurt so bad that I do not think I can take another step.
Yet, I continue to wear them.
I get funny looks wearing these shoes.
They are looks of sympathy.
I can tell in others eyes that they are glad they are my shoes and not theirs.
They never talk about my shoes.
To learn how awful my shoes are might make them uncomfortable.
To truly understand these shoes you must walk in them.
But, once you put them on, you can never take them off.
I now realize that I am not the only one who wears these shoes.
There are many pairs in the world.
Some women are like me and ache daily as they try and walk in them.
Some have learned how to walk in them so they don't hurt quite as much.
Some have worn the shoes so long that days will go by
before they think of how much they hurt.
No woman deserves to wear these shoes.
Yet, because of the shoes I am a stronger women.
These shoes have given me the strength to face anything.
They have made me who I am.
I will forever walk in the shoes of a woman who has lost a child.

~~Anonymous~~

Marshall Should Be One Today

Cakes shaped like trucks and balloons fill the air
and mothers hold their kids without care
as the sound of laughter surrounds all who are there...


I close my eyes and wish you were here
then I open them and it's just not meant to be.
Tomorrow should be a grand day for all here
instead I'm the one remembering with tears.

We chose the 11th because it follows the tenth
and a birth would be a great way to offset her death!
You didn't make it that far and we had to say goodbye too soon
but that doesn't mean I forgot the cake and balloons.

This day will always be a reminder of what was lost...
our first son who was taken at such a great cost.
So today, as I celebrate what should have been your first
I just want you to know that for you, my soul thirsts.