I don't get it. I had hardly heard of it before we got our Dx. Now, it seems like it's everywhere. There's a music group with the name. A kid thinks it's funny to blog about an anencephaly baby in his pocket. A mother, instead of taking care of the child she bore, put herself and her child in the limelight then bitches about how others see anencephaly. A young kid tolls forums looking for pictures of "frog" children.
There's nothing to like about anencephaly. It's not glorious. You can't wrap your child's head and pretend your baby is normal. You can't look at a picture of your baby's u/s and make the brain appear. Jonah had a huge protion of his brain missing. He was bleeding into his amniotic sac. We knew that either our baby would die during birth or after. There was no "what if" about it. Buying urns instead of buying bedding. What is so glamorous about that?
I want to turn everyone's attention back to where it should be. Prevention. Just as there are walks to cure breast cancer, campaigns to stop lung cancer...there should be a strong focus on prevention. Folic acid could prevent another mother from suffering this hell. But now I, and others, are being judged because we want to prevent anencephaly. Stupid. When are people going to wake up and realize that there's nothing pretty or glamorous about this?!!!
1 comment:
Some people are are on their "high horses". They know no more about this than we do. If thats what they want to believe than let them. I would much rather focus on preventing this from happening to another mother.
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